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The challenges of communicating as a carer

john-williamsonJohn Williamson is a Director of Trustees and was elected to the board in 2013.  He’s a parent carer for a young adult with Asperger Syndrome.


Why is it that carers face challenges on a daily basis and their opinions are often under valued or ignored?  We know they are experts in care but why do they often say how hard it is to find someone to listen to them?  I think that they should be respected more as experts in care?  We know that they save the country millions by providing care and support to a member of our community who could not manage without their help.

At Carers Support we hear lots of examples where carers voices have been ignored for example:

  • The wife who knows her husband is near the end of his life, who just wants to stay overnight beside him in hospital just in case. BUT the hospital policy is no overnight stays and visits are only allowed during visiting time!  Sadly, she did not get to spend the last few hours of his life with him! WHY?

  • The parents of an autistic child who is continually excluded from learning with his peers because of his behavior. The parents have to be on call all the time and the school sends the child home.  WHY?

Every carer faces the challenge of how to get their voice heard, how to advocate,  to be acknowledged as the ‘expert’ in care and to create a partnership with busy professionals.  All too often it feels like a battle for the carer and we often hear how carers feel they are continually fighting the system.   It is important for the health and wellbeing of carers, that they feel that they have some control over the stressful situations they face on a day to day basis and that they can input into what support is right.  Many of these situations are challenging and difficult.

“Carers tell us they find it valuable being with other carers, learning something new and sharing tips and advice that will help them in their caring role”

At Carers Support we know that every caring situation is different.  Carers tell us they find it valuable being with other carers, learning something new and sharing tips and advice that will help them in their caring role. We do not believe that one size fits all but we do know that our Carer Learning and Wellbeing Programme has received some great feedback over the last 6 months.

In October we are launching a new 6 month programme with some great new subjects – such as Wills and the Power of Attorney and Communicating with Confidence.  All are designed just for carers so you will be in good company. Check out our new and improved programme at www.carerssupport.org.uk

By | 2017-08-17T10:03:13+00:00 September 27th, 2016|Blog|0 Comments

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