John Williamson is a Director of Trustees and was elected to the board in 2013. He’s a parent carer for a young adult with Asperger Syndrome.
Why is it that carers face challenges on a daily basis and their opinions are often under valued or ignored? We know they are experts in care but why do they often say how hard it is to find someone to listen to them? I think that they should be respected more as experts in care? We know that they save the country millions by providing care and support to a member of our community who could not manage without their help.
At Carers Support we hear lots of examples where carers voices have been ignored for example:
The wife who knows her husband is near the end of his life, who just wants to stay overnight beside him in hospital just in case. BUT the hospital policy is no overnight stays and visits are only allowed during visiting time! Sadly, she did not get to spend the last few hours of his life with him! WHY?
The parents of an autistic child who is continually excluded from learning with his peers because of his behavior. The parents have to be on call all the time and the school sends the child home. WHY?