Here we post the latest news from Carers Support West Sussex as well as blogs from our staff, Trustees, volunteers, carers and other guest bloggers. If you think you’d like to write a blog for us, email firstname.lastname@example.org
In January, carers from our men’s group were welcomed to the Men in Sheds project based at Northbrook College, Worthing. Men in Sheds started in Australia and now has over 400 sites across the UK, where members share the tools and resources they need to work [...]
Penny is a Specialist Support Team Leader Last year we received a call from Vicky Baker at the Sussex Partnership Foundation Trust (SPFT) asking for input from, and involvement with, family and friend carers of people with a learning disability. She was keen to understand carer’s experiences, [...]
Lyn Chappell - Emotional Wellbeing Programme Lead Every year, like so many people, we get out our Christmas decorations. These are the same ones that we carefully boxed up last year. There is one in particular which catches my eye; a silver tree decoration. Just one word [...]
I am pleased to send this message as the new Chair of CSWS having been elected a trustee at the AGM and elected Chair at the Board meeting on 7th December. Firstly, on behalf of all of our carers, volunteers, staff and trustees I must record heartfelt [...]
Anne Hardy – Communications and Marketing Manager Anne has been working for Carers Support since September 2015 With Carers Week upon us I challenged myself to develop a shortlist of values that I think would make a real difference to carers living in West Sussex. I could [...]
Jane is the Dementia Team Leader. Here she writes about some of our work with partners to support dementia carers. This morning I’m meeting with one of our partners, Age UK Horsham, to see how we can work together to support our dementia carers in the Horsham [...]
Kimberley is a Dementia Wellbeing Support Worker with Carers Support West Sussex. Here she writes about our Dementia Carers Support Group. Carers Support West Sussex run several Dementia Carer Support Groups throughout the county. I am lucky enough to run three support groups, two in Worthing and [...]
Nicky is a Dementia Carer Wellbeing Support Worker with Carers Support West Sussex. Here she writes about working on one-to-one support via our mailbox. This week I have contacted a carer who lives in Chichester. She was referred to me via the Dementia mailbox. This carer has already [...]
Jackie is a member of the Carers Support Dementia Team and has written a piece about what it's like meeting new carers at our 1:1 sessions in Henfield. Today I have set up my ‘work-camp’ at The Haven in Henfield where Carers Support West Sussex have a [...]
Dennis is a Dementia Wellbeing Support Worker with Carers Support West Sussex. Here he writes about what its like setting up one of our dementia awareness courses. Right, I’ve been asked to do a four-week dementia awareness workshop, but where? Sort venue with suitable dates available and [...]
Eric is a carer living in West Sussex. He's asked that we don't publish any further details. Here is his story. My wife has PSP (Progressive Supranuclear Palsy). In the early stages she was able to be mobile using a three-wheeled walker. We used to enjoy going [...]
We couldn’t work out how you attribute the costs of loss of confidence, feelings of guilt, continual fatigue, the impact on your own health and wellbeing, the impact on family relationships and lost friendships.
I continue to learn new things every day. I have met some amazing people and I have made many new friends from all walks of life that I would not have met if I had never volunteered.
What’s really helped me was learning and accepting that I’m not just a carer. I stopped defining myself by that role and started doing some things for me. It’s far too easy to pour everything you’ve got into caring and forget that you deserve a life too.
We had regular visits to different hospitals, even Great Ormond Street, seeing physiotherapists & consultants, also a very expensive time with the travelling costs involved. The first few years were really hard. We felt totally alone getting on with it.
Matt Anderson is a Carer Wellbeing Support Worker and part of our Community and Young Adult Carers Team. He also volunteers as a Community Responder with the South East Coast Ambulance Service. Often ‘carer’ is misunderstood, people tend to think of a professional agency carer who visits [...]
Many couples in their later years are having their world changed significantly when one of them becomes the main carer due to physical infirmity, ill health or dementia.
Parkinson’s disease is a grind but because of you I don’t mind. Without you I would forget to take medication which would lead to a serious lack of co-ordination. But by guiding, encouraging and consoling me you have minimised my feeling of moving in treacle or of having a head full of cotton wool.